Episode 11

The role of Precision Medicine within ultra-rare disease – David Rose & guest host: Torie Robinson

On today’s episode, Steve welcomes our first guest presenter: Torie Robinson is host of the brilliant Epilepsy Sparks Insights Podcast and she’s chatting with David Rose.

Dave has Occipital Horn Syndrome, an ultra-rare disease effecting his heart, kidney, bladder, bowel and entire muscular-skeletal system.  He’s the only person in the UK diagnosed with the disease.  During this chat, you’ll hear more about the symptoms, and the how precision medicine has touched his life.


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